BDA Scotland · Research

Completed · February 2021–March 2022

Deaf people with dementia and care homes in Scotland

Research into effective care-home provision for Deaf BSL users living with dementia, viewed from Deaf community and care-provider perspectives.

Executive summary in BSL

About the research

The project was led by BDA Scotland in partnership with Social Research with Deaf People at the University of Manchester and funded by the Life Changes Trust.

Deaf researchers collected data in BSL through interviews and focus groups. The work explored how care homes could better meet the language, cultural, social and care needs of Deaf people living with dementia.

Project scope

Care-home and Deaf community perspectives

12Scottish care homes took part across two studies
2Deaf community focus groups explored care and communication
BSLData was collected by Deaf researchers through BSL
2022The final report and recommendations were published

What the research found

Language, culture and connection matter

The executive summary identified different priorities and perspectives between Deaf participants and care-home staff.

01

Protect BSL

Regular, meaningful communication in BSL helps residents maintain their language. Deaf participants saw preventing BSL decline as a central priority.

02

Understand Deaf culture

General deaf awareness does not replace BSL and Deaf cultural understanding. Care-home teams need better support to recognise culturally specific needs.

03

Prevent isolation

Contact with Deaf BSL users, family and community helps residents maintain social connection. Accessible information and interpreters are also essential during decisions and transition.

Recommendations

What could improve care

The report sets out detailed recommendations and timescales. Its suggested actions include:

  • Train and employ Deaf BSL cultural advocates.
  • Improve BSL and Deaf cultural training for care providers.
  • Create and implement best-care guidelines with specialist organisations.
  • Train Deaf befrienders in dementia and support culturally Deaf-friendly activities.
  • Employ Deaf BSL staff and provide practical care-home communication guides.
  • Provide accessible BSL information about care-home choices and decision making.
  • Strengthen inspection protocols for culturally Deaf BSL users.

Published March 2022

Read the research reports

Choose the shorter executive summary or the complete report. The BSL executive summary is available above.

Research approach

How the project worked

Study one: care homes with experience

Six care homes that had, or previously had, Deaf residents with dementia took part. Researchers interviewed managers and keyworkers about the services they provided.

Study two: care homes without experience

Managers from six further care homes discussed existing preparation and what they would consider important when supporting a future Deaf resident with dementia.

Two Deaf community focus groups

One group brought together Deaf BSL users with caring experience. A second explored wider Deaf community expectations of residential, day and respite care.

BSL-led remote research

Deaf researchers collected all data remotely through Zoom during the COVID-19 pandemic. Interviews and focus groups were conducted in BSL, with BSL–English interpreters available for hearing care-home staff.

Research contact: avril.hepner@bda.org.uk

This project was funded by the Life Changes Trust.